When my husband, Don, was diagnosed with dementia, I felt completely overwhelmed. With no support at the time, I didn’t know how I would manage.

In the early stages, Don’s calm presence and clever jokes still brought joy to those around him. But as the disease progressed, things became more difficult. He started wandering, often trying to return to his childhood home in Oakville. There were times I could calm him by saying his parents weren’t home, but other times, I needed help from a neighbour to bring him back and calm him down. These moments were emotionally draining, and I worried about both his safety and my own.  

As time went on, caregiving became isolating. Many friends and family members pulled away, unsure how to support me, leaving me to navigate the challenges alone.

Everything changed when we accessed various Dementia Support Programs supported by United Way Halton & Hamilton. I can’t imagine how I would have coped without their help. They provided Don with a membership in the Adult Day Program—or as we fondly called it, “the club.” The club became a place where Don could engage in trivia, music, and even bingo—a game he grew to love.

The program staff were exceptional, dropping off activity packages and organizing virtual sessions during the pandemic. For me, they also offered caregiver coffee hours, where I connected with others in similar situations. It was a relief to learn that I wasn’t alone, and those conversations gave me peace and strength to carry on.

The program provided me with 16 hours a month of in-home care for Don, giving me precious time to focus on myself. I used that time for exercise classes or simply to recharge. Additionally, the short-stay respite care allowed me to step back for longer periods when needed, knowing Don was in good hands.

After Don passed, the support didn’t stop. I joined a bereavement group and received weekly check-ins from a volunteer who had experienced a similar loss. These connections continue to be a source of healing and comfort, even today.

I’m thankful to United Way, because they didn’t just support Don—they supported me, too. By empowering caregivers, they’re improving the lives of those with dementia, ensuring they receive better care and understanding. 

Thanks to United Way, families like mine can navigate dementia with dignity, care, and hope.